It was really hard for me to tell people about what was going on with me in 11th grade. People would write on my Facebook wall asking me how I was feeling and when I was coming back to school and I never knew what exactly to reply. I wanted to express how I was feeling in a much deeper way than Facebook would enable me to. I didn't want to post all my health information in public, but I even felt uncomfortable sending private messages. How can anyone ever know what exactly you are trying to say over a message? If I type a message to someone on Facebook and say, "I got a spinal tap today, an IV, and now I'm feeling worse than ever", it may sound like I am feeling bad for myself. It also didn't really help me much when I typed out a response to someone's question about how I was feeling. In order to feel any different after, I needed to actually verbally speak to them. I felt more comfortable doing this, and it actually had positive affects on my mood.
Monday, October 31, 2011
How Do I Tell People I Have an Auto-immune Disease?
Is there any right time to tell someone about your autoimmune disease? This is one of the hardest parts about living with a disease that only flares every so often. It's important that people are aware of what I have, but it's hard to know when exactly to tell someone. I want people to know about it but if I talk about it to someone, I don't want them to think I am trying to get them to pity me for it or something. There's just a comfort in knowing that the people around you are somewhat aware of it.
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That must've been so hard (maybe still is).
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